I was diagnosed with testicular cancer in 2011 at the age of 33, and I thought my life was over.
A year ago today. :( Never in a million years when I joined the Testicular Cancer Awareness Foundation back in 2014 as a blogger at first, did I ever think that this young man Jordan Jones, the son of TCAF's founder, Kim Jones, would eventually lose his life like this to a late recurrence of the disease after so long. It's just something that's been burned into me now, how precious life really is, and how uncertain everything is. Never waste a day or a moment, and make each one count for something. We're only here for a very short time.
Six years after my cancer fight, I still GRIEVE the loss of my life as I once knew it sometimes, thinking that everything would always be okay, that my family would always be healthy, and friends that I truly love and care about will always be around. I want to believe that, but know it's just now how things work. Why do I get so sappy and emotional? Because I love you, and I want you to know that now, today, because I know that you might not be around tomorrow, or maybe I'm the one that might not be around.
One day I was reading my friend's website, and my jaw hit the floor when I read a post about grief. It was the first time I'd ever seen a "grief chart." I had no idea there even was such a thing, and I could easily identify myself at every single step of this big curve as a cancer survivor. I had been writing and sharing in my cancer journey for a few years at this point, and it had never occurred to me even once that this entire process and all that I was going through, was all really one massive grief curve.
Today marks my last two days of chemotherapy for testicular cancer, six years ago. Why do I mark the last two days, and not the last day? Because I distinctly remember just how scared out of my mind I was, worrying that the chemotherapy hadn't done its job, and that I'd have to go through these months of misery all over again, possibly without a healthy exit.
The retroperitoneal lymph node dissection surgery (RPLND) is a really gruesome and highly invasive surgery for some testicular cancer patients. It can be used as a primary form of treatment for some Stage I and Stage II patients that have been diagnosed with nonseminomatous germ cell tumors (NSGCT), and can also be used as a secondary form of treatment for the post-chemotherapy management of residual masses. The surgery is horrifying to many newly diagnosed testicular cancer patients and caregivers when they first read about it. Many will gravitate towards chemotherapy thinking that it’s “easier”, but I’m here to tell you not to be afraid of the RPLND surgery. It might actually be the better option for some.
I'm not afraid of cancer anymore, I no longer experience cancer-related anxiety, depression, or posttraumatic stress, and that's an achievement to be proud of when it's only taken me 5 years to get there. Personal behavioral change after cancer has been the key to that.
Happy Father's Day to our beloved "GP", the man who's always been there for us through every bit of our crazy lives. He's always there when we need him, wherever we need him to be, and for whatever we need him to do. He's just there and omnipresent, and we love that about him. We have less than ideal and perfect relationships, but what in life ever is? The fact that he's always been there for us through some extremely distressing times in our lives has not gone unnoticed, and we truly do love and appreciate our GP for that.
Debbie asked me to go into full Scorpio mush mode level eleventy for Mother’s Day, maybe because she wants to hear it, or maybe because she needs to hear it because of how hurt we’ve been over the past year. Either way, she damn well deserves it, and I’m happy to deliver.
I've wanted a Fuji X100 since the line first came out in 2010, but had just blown my wad on a new at the time full-frame Canon 5D Mark II camera, and was acquiring lenses for the Canon system after switching from Nikon. The first X100 was intriguing, but seemed a bit rough around the edges. Fuji made some nice improvements to the camera with the X100S successor a few years later, and I still wanted one. Then they made yet more improvements with the third generation X100T, which had finally become a very well-rounded camera, but still didn't get one. Now they've just released the fourth generation X100F with yet more improvements, and I finally bit the bullet and got one.
Do I even really need to post this one? It's a lesson that's been drilled home not just once, but a few times with me. I always had my entire life in front of me and plenty of time to do everything I wanted, until I was diagnosed with cancer. Ever since then, there's never been a such things as next year, or 5 or 10 years from now, or "when I retire". I don't have a life plan like that anymore. It's a foreign concept to me now, and it's not just because I had cancer as a young adult.
Although I write mainly about my life experiences as a young adult cancer survivor on my website, having cancer as a young adult is not the only major life challenge that I and my family have faced. There have been other challenges in our lives that have been just as painful as my cancer fight and years long recovery, if not even moreso. Cancer is just what I'm comfortable being open about. There's so much more.
This website is about my 5 month fight against testicular cancer, and my 5 year journey back to life in the survivorship years that followed. From aggressive surveillance schedules, recurrence scares and scanxiety, experiencing the loss of friends and having survivors guilt, periods of depression and post-traumatic stress, and the many physical and emotional struggles that I've faced, to finally thriving today.
This is my journey, these are my stories, this is how I live,
and all that I've learned along the way.